I met with my perinatologist and the pediatric cardiologist a couple days ago and they did an ultrasound and fetal echo on the twins. The diagnosis for our twin girl is still the same for Hypoplastic Left Heart Syndrome and we will be planning to fly down to Seattle to have the twins so she can have her first open heart surgery within a week of being born.
Our little boy twin also has larger kidneys than normal and may possibly need surgery on his kidneys also. They won't know for sure if he will need surgery until I'm closer to my due date. But the good thing is that his surgery and condition are way simpler than our twin girls with a way way better success rate.
I will have another appointment in four weeks and they will look at the babies again and start deciding when I should go down to Seattle. It's going to be a long four weeks for sure.
Wednesday, August 15, 2012
Friday, August 10, 2012
3 days till our appointment
I've been waiting very anxiously and impatiently for five weeks to see my doctor and the pediatric cardiologist and finally get some answers. Monday is our appointment and I'm so glad it's almost here.
We had originally planned a diaper party for this Sunday and decided too go ahead with it and just told people that since I could be out of state to give gift cards instead of diapers and wipes since I can't pack them. I'm always worried about offending people, but in this situation I have to be clear in what we need.
The closer we get to the appointment and the day these babies are born the more I worry about everything. How we are going to pay for Brandon's travel and the extra ticket for our daughter Olivia when we are able to bring the babies home. I also worry about if I have to stay in California for months in between the surgeries and where we will stay and how we can afford it and not lose our house. Trying to find someone to come with me while I wait to have the babies and help with Olivia and also if I'm able to at least stay in Anchorage between the first two surgeries, how we can afford that too. I know that if she can leave the hospital she won't be aloud to be far away from a cardiologist so going home is not an option.
Finances are my biggest worry just after the twin's health. I just hope and pray everything works out and maybe we can miraculously get good news on Monday.
We had originally planned a diaper party for this Sunday and decided too go ahead with it and just told people that since I could be out of state to give gift cards instead of diapers and wipes since I can't pack them. I'm always worried about offending people, but in this situation I have to be clear in what we need.
The closer we get to the appointment and the day these babies are born the more I worry about everything. How we are going to pay for Brandon's travel and the extra ticket for our daughter Olivia when we are able to bring the babies home. I also worry about if I have to stay in California for months in between the surgeries and where we will stay and how we can afford it and not lose our house. Trying to find someone to come with me while I wait to have the babies and help with Olivia and also if I'm able to at least stay in Anchorage between the first two surgeries, how we can afford that too. I know that if she can leave the hospital she won't be aloud to be far away from a cardiologist so going home is not an option.
Finances are my biggest worry just after the twin's health. I just hope and pray everything works out and maybe we can miraculously get good news on Monday.
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